Thursday, April 10, 2014

A woman living with AIDS, a daughter of a woman who succumbed to AIDS #saveryanwhitepartd #nyhaad

From Connie, in Chicago
Three decades into the HIV/AIDS epidemic we have found ourselves as a country at a yet another crossroads about whose needs are to be met and whose aren’t. Although the HIV/AIDS consumer base has changed greatly since the inception of Ryan White part D the need for specialized services have not. There have been great medical strides made that have ensured that American babies are no longer born with HIV/AIDS and we celebrate that. However, the needs of families and children affected by HIV/AIDS are still very much so valid and unique. As a woman living with AIDS and the daughter of a woman who succumbed to AIDS I am personally invested in doing my part to ensure that the millions of women, children and families infected and affected with HIV/AIDS know that their lives matter and that their needs are important. It seems as though those entrusted to make fiscal decisions are shortsighted in seeing the major impact Ryan White Part D funds have in the vitality and quality of life of these special families. Child care, transportation and housing are essential aspects of attaining and maintaining stabilized care for many women and young people living HIV. To extract these amenities is not only a disservice to the overall health of our nation but irresponsible in preventing the spread of HIV among high risk populations. It is my hope that our elected decision makers are thoroughly informed about the potential negative effects removing Part D will have on individuals, families, communities and subsequently the country at large.
Diagnosed: October 2002
In Loving Memory of Gladys D. Johnson
Date of Departure: January 26, 1995

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